Eye Yi Yi Exam

Oh - an apple all for ME?!?!?

I was always curious how Jace would do with a full piece of fruit to snack on. I figured I would start the apple for him but he proved to me as he went on eating it that doing that was not necessary LOL 

What a big boy! He loved eating his apple on his own.....then throwing it like a ball!  

The. Best. Snack. Ever.



Halloween was fun and easy going. We went to Aunt Kiki's and Uncle Nathan's House. There was a parade, a party at the clubhouse and then we ate fajitas at their house. After the fajitas it was trick or treating time, however Jace was on the edge of being flat out E.X.H.A.U.S.T.E.D!  So, we decided to skip the trick or treating and went home. He did get some goodies - chocolate chip cookies! He LOVED THEM! We won't be able to get away without trick or treating next year I bet!

The best part of Halloween was watching Jace literally chase Lincoln! Jace was trying his hardest to run and all. His legs are just so short and chubby LOL He had a blast playing with Lincoln. We can't wait to get him back into daycare to have kids to play with. For now it is best that he is at home where we can monitor his seizures but he will be back to daycare and socializing SOON!

Best picture we could get - he was on the MOVE!

Fast Moving Dinosaur!

 When we made it home Jace was OUT! He was plain ol' played out! He didn't wake up until he hit the water in the shower. After that I decided any other special nights like this we would skip bath because he was SO tired and that 20 minute nap before shower was more like an energy booster making it difficult for him to fall back to sleep for the night.

Big Boy Played Out!

Notice the pacifier shaped ring of chocolate around his mouth!

Today was Jace's first eye appointments required for taking Sabril. They require you to have an eye exam within the first 4 weeks of starting the medication and a follow up every 3 months. Unfortunately, they are not able to do a vision field test on Jace due to his age but they can test that he follows the light and look into his retinas. Poor baby had to get his eye dilated today for them to check his retinas BUT he did great! After getting the drops he pretty much slept through the exam after that.

The good news is that Jace has no retinal involvement with TSC. There can be retinal lesions and they did not see ANY! SCORE! Jace is actually a pretty simple TSC patient. He has skin and brain involvement. Thank God he has no heart, renal, retinal or any of the other possible manifestations that are possible. We are blessed that his is "simple" - if you can even call him that! LOL

It also looked like Jace's peripheral vision, from what they could test, seemed to be unaffected. He saw the light by the side of his head fine and I pray he continues to keep his vision!

Last night we noticed that Jace had a small bite by his left eye and thought nothing of it. He was not complaining of it and we figured it was a mosquito since they normally looked that red when he gets them.

Even this morning it looked fine but by the time I got home from work it was all swollen, hard and starting to swell his eye. This is not a great picture of it but you can kind of get a view of it. It looks so much worse in person. Since it bothered him at nap earlier we attempted Benadryl (after calls to the pharmacy to be sure there were not interactions with his meds) and praying the swelling decreases.  

Jace was being silly at dinner and I felt like playing around with my new birthday present JB got me!

(Thank you baby) So enjoy the silliness of Jace and his activities while eating dinner!

I must add that not only did I get this awesome video camera that CAN go under water but I got a MixBook that JB made of Jace's first year! OMG! It was SO incredibly sweet! I loved it and I think I can look at it everyday! :) That was by far the best gift ever!