I met with the ECI (Early Childhood Intervention) ladies today to go over all the paperwork concerning Jace and the services he will receive. We all agreed that our goal is in 6 months to be able to understand more of what Jace is trying to say when he speaks and to know if his speech "delay" is a hearing issue or an actual delay. They gave me some ideas to help when we are talking to him like to get down on his level when talking to him. Also, whatever object we are talking about, put that object close to our mouths so he can see the movement of our lips when pronouncing the words.
JB and I were given homework as well. We need to make a list of sounds that he can already make. I know he has mastered "d", "a", "b", and "e" sounds.....most of his words he leaves off the beginning consonant. When he says Please it's "Ease", Light is "Ight", Fan is "an" and Amen is "A-den". At this point we can't not say for sure that this is a normal progression for him since we know he has ear troubles and possibly hearing reduction. I pray that if there is any issue with his language that it is completely resolved by getting his ears cleared up. We will know how well his hearing is on April 20th when we go to the ENT follow up.
Next Wednesday will be the first day Jace gets services from ECI. This program is incredible and such a blessing! They are going to help me find out about medicaid waivers and other programs that may assist us with the financial burden that Tuberous Sclerosis can cause. The best part of this program is that they come to Jace! They come to his daycare and I don't have to miss work to take him to appointments. I would in a heart beat do so but the fact that I have this amazing option is so great.
There is another little girl in his class that receives services so Jace is familiar with the therapist!
JB and I were given homework as well. We need to make a list of sounds that he can already make. I know he has mastered "d", "a", "b", and "e" sounds.....most of his words he leaves off the beginning consonant. When he says Please it's "Ease", Light is "Ight", Fan is "an" and Amen is "A-den". At this point we can't not say for sure that this is a normal progression for him since we know he has ear troubles and possibly hearing reduction. I pray that if there is any issue with his language that it is completely resolved by getting his ears cleared up. We will know how well his hearing is on April 20th when we go to the ENT follow up.
Next Wednesday will be the first day Jace gets services from ECI. This program is incredible and such a blessing! They are going to help me find out about medicaid waivers and other programs that may assist us with the financial burden that Tuberous Sclerosis can cause. The best part of this program is that they come to Jace! They come to his daycare and I don't have to miss work to take him to appointments. I would in a heart beat do so but the fact that I have this amazing option is so great.
There is another little girl in his class that receives services so Jace is familiar with the therapist!
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