Saturday, May 14, 2011

Step Forward to Cure TSC - Jace's Prayer Posse

The day has come for the WALK!!!

 8\I am going to attempt blogging with Jace running around SO......if he has some input I may just leave it on here :)

We had shirts made for the walk by Digital Imaging Services who is owned by family friends, Reka and Danny Benczedi. The shirts are GREAT quality and the printing is not the kind that cracks, fades, or wears off. I HIGHLY recommend using them when you need custom printed shirts!
Adult Tees

Toddler Tees
After a late start this morning (Jace let us sleep in until 7am surprisingly) we finally made it to MacGregor Park. Our team was a good size even considering quite a few who planned to come could not make it.


Small snack before the walk with cousin, Brayden


Jace's Prayer Posse
Left to Right: Kylee, Staci, Cade, Sheri, Dani, Brayden, Grant,
Justin, Kristen, Holly, Jace, Pawpaw Huetwohl, Patti and Ranjita


Daddy and Jace ready to walk

Mommy and Jace
Before the walk we were told about the money granted to TSC Alliance for research.
There is normally 4 million given for research by the department of defense but this year they were granted another 6 million to fund research!!
Dr. Northrup and Dr. Koenig spoke about the research they have been conducting at the Houston TSC clinic. So far their trials have been successful and will continue!

There will be some coverage about the walk on Channel 11 KHOU news at noon on Monday. Rick Trevino from Channel 11 was at the walk - his neice has TSC and so he is personally impacted as well.
Look for us walking on Monday at noon!

And then the walk began.....

Aunt Kiki and Grant

Thank God for the Beco and this GREAT weather

Sheri, Dani and Pawpaw Huetwohl

After the walk there were hotdogs and hamburgers served, a silent auction was put on and the kids played at the park! 
They also had a firetruck come for a bit to give tours to the kids! 
We had Jace take a picture with a firefighter. He was mesmerized by the doors on the truck! HA LOL 

They gave out door prizes and Jace won a Transformer's Snuggie :)
He may not be able to use it just yet but I bet it is used alot in the future!

We got home and everyone took a nap (well except me)!

Jace was POOPED!



Jace has something to say:

3vv c vcx , lc l,; c/.x/.cv f,sxz

- Love Jace :)

That was Jace's way of saying THANK YOU to everyone the donated and those that walked with us, either in person or in spirit! We are so incredibly blessed with so many family and friends that care for our family and Jace's future. WE love you all!!

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