Friday, December 20, 2013

The Best Christmas Gift

Its been a LONG time since I have updated the blog. 
Its been pretty quiet and uneventful  lately but today is a worthy day for an update! 

We went to Jace's epileptologist appointment today. We follow up with her every 6 months. 
Last time we saw her, she decreased Jace's Banzel just a tad. She was not too interested in weaning him soon. She even mentioned that Jace may have to be on an anti-epileptic forever just to be safe. 
I pray all the time that Jace would be taken off medication completely, one day. I knew that as he grew, he would eventually outgrow his dose and that alone would be proof that he doesn't need anymore.  

Today we left his appointment with a titration schedule to get him off Banzel completely!! 
Thank you God for answering our prayers! He is so very faithful!! 
 She said she was only ok with this if we had Diastat on hand for any emergencies. I will gladly accept this "stipulation" to be able to see Jace be medication free! I can't wait to see what else he will pick up when he has the fog lifted that medication can cause. 

This is the best Christmas present I could have been given this year! 



Along with this great news, we also received some worrisome news. 
We did an MRI and renal ultrasound back in August. The MRI came back with no changes from before.
However, they did find cysts on his kidneys.  She said it was nothing to be alarmed by but that we should see the pediatric nephrologist to follow up and keep an eye on this. 
I will not allow this to scare me and I will cling to Jesus. 
I am always being placed back to knowing I must depend on Him! 
I will adding to my prayers that these cysts are taken away! God is our healer! 
I love that I can put faith in Him.......Jace is not mine. He is God's child! 
God has His arms wrapped tightly around Jace! 

Christmas is almost here and I we are so excited here at the Bryan household! 
Here are some family pictures we took this year. 















MERRY CHRISTMAS FROM OUR FAMILY TO YOURS!!!