A quick update on how Levi is doing.
Since our most recent visit with Dr. Stewart, Levi has been nearly seizure free.
At the first visit and after some blood work, we started Levi on supplements and medication.
This latest visit we added another medication.
Levi is still on the Onfi and Trileptal, but in addition he is taking:
Neuro Immune Stabilizer Topical Cream - 1 pump, twice a day
Leucovorin Tab 5 mg - 1 tab twice a day
Acyclovir 200 mg - 1 capsule a day (we will be discontinuing this soon)
Pregnenolone 15 mg - 1 capsule a day (blood work showed that he was very low)
Low Dose Naltrexone HCL 3 mg - 1 cap a day
The Naltrexone was the most recent medication prescribed, on Feb. 24th, and since beginning that Levi’s seizures reduced dramatically. He stopped having seizures completely for 2 weeks but did have 2 auras. On March 8th he started to come down with a cold, and this caused seizures for 4 days. Since March 12th, we have not seen any seizures again and Levi has not had any auras since.
As he continues to be seizure free, we may switch his actual seizure medicine to a less hindering (cognitively) medication.
It has been a blessing to find a doctor that is willing to help treat Levi from the inside out.
We no longer have surgery as an option on our radar!
