Last Weekend of Summer 2015

Now that I have finally figured out the uploading videos from a MAC I can get back to blogging :) 

I will be going back to fill in the huge gap from my last blog post to this one 

Jace is headed to 1st grade tomorrow!  

Being the last weekend we had to squeeze in some fun before summer was officially over. 

Our first stop was the Children's Museum of Houston

Both boys are finally big enough to navigate all it. 

They had SO much fun! 

Intrigued

Jace is practicing his power skills

Super Jace

Then Sunday my parents made a date to come get the boys and take them to Monkey Joes! 

I haven't seen Jace smile this big in a long time! 

Grandma, Pawpaw, and the boys were thoroughly exhausted! 

They should all sleep well! 

Bright Horizons

Jace is such a great big brother! 

Don't get me wrong....he is a bigger brother, but he is sweet as can be at times with Levi. 

The other night he wanted to read a book to Levi before bed. 

I am not ready for potty training with Levi yet...mainly because I am still trying to get our new puppy, Cooper.  BUT....Levi may have other plans. He has been showing interest in the potty. 

Levi came up to me and told me "poo poo" then ran to the bathroom. He wanted to use the toilet. 

I went with it. Removed his diaper and put him on the potty. 

He never actually went but when I told him to go poo poo he did grunt and push LOL 

It is a start and the fact that he started it is great! 

Along with an interest in potty training, this little guy is teething pretty bad!! 

He has been whiny and clingy. 

I know this is a phase and it will pass but goodness it makes the days long. 

Jace has been doing great since he has weaned off his medication. 

He has been focusing better and I can tell thinks are clicking more for him. 

We had Jace's ARD meeting this past week. 

His goals were updated to things that most kids his age need assistance learning. 

There are a few things that he is behind in but I think he will improve with the continuous support he has been getting. I have said it before and I will say it again, his teachers and speech therapist are phenomenal! Jace has come so far in just a year! It way more than I thought could happen and I am so grateful for what PPCD has done for him. 

Along with the new goals, his teachers say that he is ready for kindergarten!! 

Jace will be in kindergarten this fall! As scary as this is, its just as exciting. 

I imagine for any parent the feeling is the same. We are a little worried about the chance of Jace being bullied but that again is probably a normal fear. 

What I do know is that Jace will make friends! 

He is so loving and nurturing. He is friendly, kind, and accepting to everyone. 

There is a bright horizon ahead and Jace is going to SHINE in kindergarten! 

Besides prayers for Jace's new journey into kindergarten, we do need some prayers for his health. 

We went to the nephrologist since Dr. Von Allmen mentioned seeing the cysts on his kidneys in the ultrasound. The nephrologist said that we don't need to worry about the two cysts we found. They are 3 mm in size at the moment. That is tiny! But we do need to monitor them yearly. Typically, the cysts grow with time and it is not until someone is much older before they cause issues. 

God has had his hand on Jace with seizures so I know HE will handle this. 

My specific prayers are that the cysts never grow in size and never cause any issues for him. 

God is our healer and HE is in control! 

Thank you so much for the prayers. We love our prayer posse! 

Bye Bye Banzel

Prayers are answered all the time....and we have so much proof! 

Tonight was the last dose of Jace's medication. 

The only thing we have to give to Jace on a regular basis now is a multivitamin! 

I am beyond excited for him....for his future.....for everything! 

I am even welcoming that feeling of forgetting something I am sure to face for a while. 

Our God is an awesome God!! 

Thank you for the prayers.....God has been listening to us. 

Please persist with the prayers that Jace continues to grow and develop the way that he is and that Levi never has to encounter any of what Jace has had to face. 

We love all of Jace's Prayer Posse! 

Thank y'all!

The Best Christmas Gift

Its been a LONG time since I have updated the blog. 

Its been pretty quiet and uneventful  lately but today is a worthy day for an update! 

We went to Jace's epileptologist appointment today. We follow up with her every 6 months. 

Last time we saw her, she decreased Jace's Banzel just a tad. She was not too interested in weaning him soon. She even mentioned that Jace may have to be on an anti-epileptic forever just to be safe. 

I pray all the time that Jace would be taken off medication completely, one day. I knew that as he grew, he would eventually outgrow his dose and that alone would be proof that he doesn't need anymore.  

Today we left his appointment with a titration schedule to get him off Banzel completely!! 

Thank you God for answering our prayers! He is so very faithful!! 

 She said she was only ok with this if we had Diastat on hand for any emergencies. I will gladly accept this "stipulation" to be able to see Jace be medication free! I can't wait to see what else he will pick up when he has the fog lifted that medication can cause. 

This is the best Christmas present I could have been given this year! 

Along with this great news, we also received some worrisome news. 

We did an MRI and renal ultrasound back in August. The MRI came back with no changes from before.

However, they did find cysts on his kidneys.  She said it was nothing to be alarmed by but that we should see the pediatric nephrologist to follow up and keep an eye on this. 

I will not allow this to scare me and I will cling to Jesus. 

I am always being placed back to knowing I must depend on Him! 

I will adding to my prayers that these cysts are taken away! God is our healer! 

I love that I can put faith in Him.......Jace is not mine. He is God's child! 

God has His arms wrapped tightly around Jace! 

Christmas is almost here and I we are so excited here at the Bryan household! 

Here are some family pictures we took this year. 

MERRY CHRISTMAS FROM OUR FAMILY TO YOURS!!! 

It's Back to School Time...

Jace's doctor asked him to be the poster kid for their 1st annual epilepsy reunion. 

This year it was held at the zoo right before Halloween. 

This was one of the pictures we took for that poster and inviation. 

Levi is growing like crazy and learning new things all the time.
He has been working on his fine motor skills but gets frustrated pretty easily.
Its actually pretty funny :)

Along with fine motor skills, he has learned how to go down the stairs!

We took Jace to the movies for the first time. We went to see Planes!
He LOVED it and did so well in the theater.

Asking Daddy for some candy

"WOW!!!" 

Levi's hair is starting to get so long and is due for a haircut! 

Look at that hair!! 

So, we went to the kid haircut place and got his hair cut! 

Our 1st haircut keepsake

Jace went back to school. This year he will be attending the afternoon PPCD class. 

I hope he loves it this year! 

We are so happy that he will have the same teachers as last year.