Monday, June 20, 2011

Happy Dada's Day

JB got his very first Father's Day tie! :)
They made these at daycare and I have to say its very unique! 

Think JB will wear it at the next formal event?  
Yeah I didn't think so either but its a keeper for sure!

Jace and I gave JB a collage for his office.

This isn't the best picture of it but you get the "picture" - No pun intended HA! :)

Today we had Jace's follow up appointment with his epileptologist. She suggested we get him evaluated with a physical therapist. She agrees that the way his feet turn in so much is neurological, especially since it tends to get worse when his seizures are out of control. We may need to look into getting a brace or something to help prevent the tendency that his feet have to turn in.
Jace's MRI and Renal Ultrasound came back normal. Well the kidneys are normal and the MRI showed no other changes from previous MRIs. The medical students are the ones that looked over the MRI reports so Dr. Von Allmen said that if she sees something that she needs to lets us know about that she will call us - otherwise she won't contact us. So no news will be good news. :)  
Also we discussed the seizure and medication roller coaster. We plan to have another 23 hour EEG sometime this summer and see what it shows. Since the increase in his Banzel has helped we are going to wait and see how things progress as he gets older and bigger. If he starts to stop developing or his seizures get to become out of control and an increase in meds doesn't help then we will push on to more aggressive treatment (surgery). If the 23 hour EEG shows just as bad activity as there was back in December then we may push forward to surgery. However, until something like this comes up we are going to wait until Jace is older, stronger and his seizures are much more focal.
So to sum it all up we are going to wait and see for now with his seizures.
We are going to get into a PT soon to be evaluated.

On the way home today JB got Jace to say words after we said them. He has been slowly but surely starting to mimick us. Justin asked him to say "Cade" and he said it! We had to record it and send to it to Cade. Cade got a kick out of the video. The best part is what Jace does when we tell him to tell Cade "Hi"



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